As most of you know I don’t mind telling anyone that I have epilepsy. Some people already understand epilepsy because they have a family member that has it or they knew someone. I still mention that there are many different kinds of epilepsy.
I try to keep up with new medication and research. I usually have a long list of questions I take to the doctor’s office. I read journals instead of novels. I don’t think I am an expert. Far from that. I heard something that I thought was directed at me. When you try to get money for epilepsy research you have to prove you know something. I can say that I am not an expert or a doctor.
I just go through epilepsy in real life. I am an expert on what it is like not to drive, have surgery that didn’t help, multiple MRIs (not just simple MRI), and special procedures. I know what it is like to stand up to people who think you can not work.
Something people don’t think about is when parents who take care of their children with epilepsy or autism, which sometimes come together, get too old to take care of the children. The children though are in their 40’s or 50’s. Did that open your eyes.
I never thought about that until I talked to someone, now a friend, who brought that to my attention. The kids, being older adults will need help with taking their medicine, going to doctor’s appointments, or just getting up and down. This is why I try to bring attention to epilepsy! This is not for me! I just don’t drive. I am a lucky person with family close by. I married my high school sweetheart that is stuck with me through thick and thin. I call my older daughter, chauffeur.
THIS IS JUST SOMETHING TO THINK ABOUT.